PozKids: HIV-positive children transitioning to adolescence and adulthood

Past project

This qualitative pilot study explored key issues associated with the transition to adolescence and adulthood for children living with HIV in NSW, and the implications of these for health, HIV prevention and clinical care in NSW. No published research existed on this population in Australia prior to this study. Gathering in-depth information both from young people with HIV in NSW and from clinicians who provide direct care to this population in NSW and in other states provided timely insights regarding this emerging group within the HIV epidemic in NSW, particularly challenges and needs that affect their continued engagement with treatment and other forms of HIV care during a time of life that typically features considerable change. While this is a relatively small population, they are important in terms of priorities for both HIV prevention and the delivery of care. A key focus of the research was understanding how to best support the transition of HIV-positive children and young people to adolescence and adulthood, including negotiating the move from paediatric to adult HIV care services, and strengthening their skills and capacities in sexual practice and other dimensions of adult life. The study was conducted by CSRH in collaboration with the Paediatric HIV Service at Sydney Children’s Hospital and was partly funded by a Gilead Fellowship 2013. The study was conducted 2012 and 2015, and five publications produced.

Funding Agency

Gilead Science, Australian Government Department of Health

Partners / Collaborators

Paediatric HIV Service, Sydney Children’s Hospital

Persson, A., Newman, C., & Miller, A. (2016) “There’s more to you than just this virus”: Talking to young people about growing up with perinatally acquired HIV. In Pranee Liamputtong (Ed.) Children, Young People and HIV/AIDS: A Cross-Cultural Perspective. Springer. http://www.springer.com/gp/book/9783319299341

Newman, C.E., Persson, A., Miller, A., Brown, R.J. (2015) “Just take your medicine and everything will be fine”: Responsibilisation narratives in accounts of transitioning young people with HIV into adult care services in Australia. AIDS Care, 28(1), 131-136. http://dx.doi.org/10.1080/09540121.2015.1069790

Newman, C., Persson, A., Miller, A. & Cama, E. (2014) Bridging worlds, breaking rules: Clinician perspectives on transitioning young people with perinatally acquired HIV into adult care in a low prevalence setting. AIDS Patient Care and STDs, 28(7), 381-393. http://dx.doi.org/10.1089/apc.2013.0346

Persson, A., Newman, C. & Miller, A. (2014) Caring for “underground” kids: Qualitative interviews with clinicians about key issues for young people growing up with perinatally acquired HIV in Australia. International Journal of Adolescence and Youth, published online: 27 Jan 2014. http://dx.doi.org/10.1080/02673843.2013.866149

Persson, A. and Newman, C. (2013) When HIV-positive young people grow up. HIV Australia, 2013. http://www.afao.org.au/library/hiv-australia/volume-11/vol.-11-number-1/hiv-young-people-transition-to-adolescence

Persson, A. and Newman, C. (2012) When HIV-positive children grow up: A critical analysis of the transition literature in developed countries. Qualitative Health Research, 22(5), 656-667. . http://dx.doi.org/10.1177/1049732311431445

Miller, A., Persson, A., & Newman, C. (2014) Not so alone: The importance of relationships when growing up with HIV. HIV Australia, 12(1), 17-19. https://www.afao.org.au/library/hiv-australia/volume-12/vol.-12-number-1/not-so-alone-the-importance-of-relationships-in-growing-up-with-hiv#.V_14So996Uk

Newman, C. & Persson, A. (2013) When HIV-positive young people grow up: A critical review of the “transition” literature. HIV Australia, 11(1), 29-32. https://www.afao.org.au/library/hiv-australia/volume-11/vol.-11-number-1/hiv-young-people-transition-to-adolescence#.V_14vo996Uk

Newman, C.E., Persson, A., Miller, A. (August 2015) HIV positive children transitioning to adolescence and adulthood. Gilead Best Practice Sharing Symposium: Improving patient care in HIV and chronic viral hepatitis, Sydney. https://gileadfellowship.com.au/Videos [Under HIV category]

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