Health information needs and practices of Chinese and Vietnamese people living in Australia regarding primary liver cancer (hepatocellular carcinoma)
Overall, hepatocellular carcinoma (HCC) is relatively uncommon in Australia, but its incidence has been progressively rising over the last three decades. In NSW approximately half of all HCC diagnoses occur in Australians born in Vietnam, Hong Kong, Macau, Korea, Indonesia and China. Anecdotal evidence identifies a lack of patient information resources and limited support systems for patients diagnosed with HCC, particularly for non-English speaking patients. This project, led by Cancer Council NSW in collaboration with CSRH, aimed to identify the information needs of people diagnosed with liver cancer in Australia. The project documented the information and support needs of Vietnamese and Chinese people affected by HCC, developed a multimedia support network for HCC, developed and pilot tested a language-specific consumer resource on HCC in Chinese and Vietnamese, and suggested a framework for facilitating the development of integrated support networks. Community benefits flowing on from this program include the production of consumer information about liver cancer integrated in a consumer support network and the development of HCC information resources for some communities with limited English proficiency and limited literacy levels.
Partners / Collaborators
Hopwood, M., Robotin, M., Porwal, M., Nguyen, D., Sze, M., George, J., & Treloar, C. (2016). A peaceful mind: Vietnamese-Australians with liver cancer (Interview report). Sydney: Centre for Social Research in Health, UNSW Australia. http://doi.org/10.4225/53/58d35a6fdb60
Hopwood, M., Robotin, M., Porwal, M., Nguyen, D., Sze, M., George, J., & Treloar, C. (2016). Cantonese-speaking and Mandarin-speaking people with liver cancer in Australia: A report of two focus group discussions. Sydney: Centre for Social Research in Health, UNSW Australia. http://doi.org/10.4225/53/58d35be5859f2
Hopwood, M., & Treloar, C. (2013). Health information needs and practices of Chinese & Vietnamese people living in Australia regarding primary liver cancer: A literature review. Sydney: Centre for Social Research in Health, UNSW Australia.