Making decisions about hepatitis C treatment

This project used quantitative and qualitative methods to determine the factors that influence people’s decisions to undertake treatment for hepatitis C. In 2008, quantitative data were collected from 713 people with hepatitis C. Respondents were recruited from various avenues including pharmacotherapy clinics, pharmacies, needle and syringe programs, and the mailing lists of the Hepatitis C Council of NSW and Haemophilia Australia.

Self-complete surveys collected data about knowledge and perceptions of treatment, social support, symptom severity, and experiences of discrimination, among others. The qualitative component of the project included interviews with people living with hepatitis C and focus groups and interviews with clinicians in drug treatment services. CSRH researchers are now collaborating on the ETHOS Project (Enhancing Treatment for Hepatitis C in Opiate Substitution) conducted by the National Centre in HIV Epidemiology and Clinical Research. A study report about the quantitative and qualitative data was published in 2010.

Funding Agency

NSW Health, Australian Government Department of Health and Ageing

Non-Staff Involved

Hannah Wilson

Peter Hull

Yvonna Lavis

Jamee Newland


Wilson, H., Hopwood, M., Hull, P., Lavis, Y., Newland, J., Bryant, J., & Treloar, C. (2010). Treatment decisions: what makes people decide to have treatment for hepatitis C? Sydney: National Centre in HIV Social Research, The University of New South Wales. (PDF)

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